Instead of leaving the NICU on Wednesday before free parking was over, I stayed for the Mommy Care group. There were two other moms in the group, both with preemies who were in the step down nursery. The conversation was facilitated by the same social worker who is teaching me to knit.
I enjoyed connecting with the other moms , but they aren't going through what I am going through. Not only are their babies closer to going home, but their children are perfectly normal. They just need to gain weight so they can go home.
Conversely, the doctors don't know what is wrong with Ian, just that it's genetic and it's wrong. For some reason the way he formed in my womb has made him wonky. His sweet face is set upon a backdrop of low set ears, a short, webbed neck, a lot of extra skin at the nape of his neck where his hygroma was, in addition to his (apparently) long pinky fingers....plus other things.
Then there are the numerous things that we can't see or have yet to discover.
No comments:
Post a Comment