More serious update

Ian is being followed by a pediatric neurosurgeon because he had a brain hemorrhage early in his NICU stay that seems to have caused extra fluid on his brain. (NO ONE bothered to mention that this had occurred in the hospital. We did not learn about it until the neurosurgeon mentioned it at our appointment a week after Ian came home.)Within a month his head went from being shaped like his daddy's to being shaped like Tweety bird's head. His past two MRIs have not conclusively shown an increase in head fluid level at a high rate. Also, his head circumference measurements have been consistent with the normal rate of growth... Though his head size is in the high 90s for percentile.

On Saturday, which is also my 29th birthday, we have a follow up MRI to decide his course of treatment. It sounds like the doctor may want to do an EVT procedure to drain the extra fluid from his ventricles that was not re absorbed when his brain hemorrhaged. This would involve placing several burr holes in his skull and letting his head drain for a few days in this hospital ( another hospitalization). Needless to say, Doug and I are not keen on the idea of going back into surgery.... And then back into the hospital.

When Ian had surgery December 19th of last year, he went from breathing on his own to having a breathing tube down his throat (square one) then spent an entire month undergoing a tough recovery process and learning how to breathe again.

So I am boldly asking God to have Ian's brain to self heal and resolve the hydrocephalus on its own. So far the hydrocephalus has not seemed to show that Ian's brain is under additional pressure from the fluid. He has already been through so much. I don't want him to need another surgery. Our follow up to the MRI is March 14 with the neurosurgeon. We need good news.